Trisomy 13, also known as Patau's Syndrome, and Trisomy 18, also known
as Edwards Syndrome, are genetic defects associated with mental retardation
and other defects of the head and organs. Roughly half of children born
with Trisomy 13 or 18 die within a week, and most of the rest die within
six months. However, with improved care children with these disorders are
living past their first year, and there has been at least one reported
case of a child with Trisomy 18 living to adulthood. Other chromosomes
can also be partially or fully duplicated, usually causing serious problems
for the baby.
Many parents are convinced that children with severe genetic disorders
will only know pain, and therefore choose abortion. They see the decision
to abort as disconnecting life support for a dying, suffering child. They
also are likely to be recruited by abortionists as public spokespersons
for late abortion, in order to generate the perception that their situations
are typical of parents choosing late abortions.
Parents facing a rare genetic diagnosis need resources to help their
children live their lives to the fullest, and the Internet offers previously
unimagined opportunities to network with other families around the world.
Chromosome 18 Registry and
Research Society
Learning more about abnomalities of chromosome 18, looking to the
future with hope.
Chromosome 22 Central
A networking and information resource for families of children
with abnormalities of the chromosome 22.
International 11;22
Translocation Network
A networking and information resource for families of children
with this rare disorder.
Iona
A little girl with Trisomy 18.
Letter To Physicians
A mother tells doctors what they need to know about helping a family with a diagnosis of Trisomy 13.
Living With Trisomy 13
A page by a mother of a child with Trisomy 13.
Trisomy 13 Support, Resources, & Links
A spectacular collection of resources and links -- should also be helpful to parents facing other grave diagnoses.
Carrying To Term
A mother who has been there offers guidance.
Autumn Troy
Autumn is 18 years old, and has partial trisomy 13 with partial trisomy 11 or 17 mosaic.
Trisomy 13 Photos
Photo album with links to stories of children living with Trisomy 13
Rare Chromosome Disorders Webring Home
If you have a site, you can add it here.
Our Angel
Aliva lived two years with Trisomy 18.
Prenatal Diagnosis - Trisomy 13
The mother of a child with Trisomy 13 offers networking and support to other parents.
SOFT
Support Organization For Trisomy 13, 18, & Related Disorders.
Susanna's
Page
Susana lived for nine days with Trisomy 18.
What is Trisomy 13?
An excellent resource, with abundant information and links.
For more information on congenital conditions:
Prenatal Diagnoses
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