A rare chromosomal abnormality, Monosomy 9P or Alfi's Syndrome causes developmental delays and physical problems. Parents have banded together after becoming frustrated over doctor's grim prognoses and unwillingness to help their children.
Chromosome 9P
Support and networking.
"Common
Ground for Rare Disorder"
An old Boston Globe article on a gathering of parents
and children.
"Families
Learn They Aren't Alone"
Archived article, with a photo of some of the children with
Alfi's Syndrome.
"The
Ninth Chromosome"
Archived article, with a photos of Chelsea, a child with Alfi's
Syndrome.
For more information on congenital conditions:
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